Wink (Rob Harrell)

 

Funny thing. This was one of the choices for our book club but it wasn't the book picked. Somehow I still bought it and read it thinking that it was....and I'm so glad I did read it. It's a great book. I've been through the cancer rollercoaster with family and I thought the author did a great job of portraying how hard it is to roll with the good news and the bad news that wrecks your mind and heart. I've never had cancer myself, but it seemed like a legit response, especially for a middle school kid. The different responses of his friends and family also seemed very real. Might be a little mature for grade 3....but if a kid were going through this kind of thing, I'd definitely do a book talk on this one to encourage them to read it. I'll look for more Rob Harrell books!

Now....to go get the RIGHT book before our meeting. LOL

Goodreads says:

A wrenching and hilarious story about embracing life's weirdness and surviving an unthinkable diagnosis, based on the author's own experience with a rare eye cancer.

Twelve-year-old Ross Maloy just wants to be normal. Not to have a rare eye cancer, not to lose his hair, not to have to wear a weird hat or have a goopy eye full of ointment. Just normal. But with a sudden and horrifying diagnosis, Ross can't help standing out. His new life is medical treatments that feel straight out of a video game, vision loss in one eye, disappearing friends who don't know what to say to "the cancer kid," cruel bullying, and ultimately, friendships new and old that rise above everything.

Just when Ross starts to feel like he's losing his footing, he discovers how music, art, and true friends can change everything. Filled with Rob Harrell's comic panels (Batpig for the win!) and spot art, this novel brings effortless humor and hope to an unforgettable, uplifting story of survival.

Between Two Kingdoms (Suleika Jaouad)

 

The more I read this book, the more I loved it. Having gone through cancer (and death) with two close family members, her journey through cancer touched my heart. I also really loved the way the book ended - with her travling around and meeting up with all the people she had connected with through her writing and with the lessons she learned from them as she worked to return to a healthy life after cancer. There were a lot of great lessons. Cancer took a lot from the author....and in the end, she said she would not reverse her diagnosis and would not take back the suffering to learn the lessons she gained. I'd say the same thing for the experiences of grief that I've experienced. In the moment, I was not grateful for the experiences, but time is a great healer and gref is a great teacher.

Goodreads says:

A searing, deeply moving memoir of illness and recovery that traces one young woman’s journey from diagnosis to remission and, ultimately, a road trip of healing and self-discovery.

In the summer after graduating from college, Suleika Jaouad was preparing, as they say in commencement speeches, to enter “the real world”. She had fallen in love and moved to Paris to pursue her dream of becoming a war correspondent. The real world she found, however, would take her into a very different kind of conflict zone.

It started with an itch—first on her feet, then up her legs, like a thousand invisible mosquito bites. Next came the exhaustion, and the six-hour naps that only deepened her fatigue. Then a trip to the doctor and, a few weeks shy of her twenty-third birthday, a diagnosis: leukemia, with a 35 percent chance of survival. Just like that, the life she had imagined for herself had gone up in flames. By the time Jaouad flew home to New York, she had lost her job, her apartment, and her independence. She would spend much of the next four years in a hospital bed, fighting for her life and chronicling the saga in a column for The New York Times.

When Jaouad finally walked out of the cancer ward—after three and a half years of chemo, a clinical trial, and a bone marrow transplant—she was, according to the doctors, cured. But as she would soon learn, a cure is not where the work of healing ends; it’s where it begins. She had spent the past 1,500 days in desperate pursuit of one goal—to survive. And now that she’d done so, she realized that she had no idea how to live.

How would she reenter the world and live again? How could she reclaim what had been lost? Jaouad embarked—with her new best friend, Oscar, a scruffy terrier mutt—on a 100-day, 15,000-mile road trip across the country. She set out to meet some of the strangers who had written to her during her years in the hospital: a teenage girl in Florida also recovering from cancer; a teacher in California grieving the death of her son; a death-row inmate in Texas who’d spent his own years confined to a room. What she learned on this trip is that the divide between sick and well is porous, that the vast majority of us will travel back and forth between these realms throughout our lives. Between Two Kingdoms is a profound chronicle of survivorship and a fierce, tender, and inspiring exploration of what it means to begin again. 

Everything Happens for a Reason, and Other Lies I've Loved (Kate Bowler)

 

I first was introduced to Kate Bowler when her book, No Cure For Being Human, was chosen for the Happier podcast book club. I loved that book. I had a harder time with this one. A lot of it was the same story as her other book but this one was more philosophical. I found that sometimes I felt buoyed by it and admired her approached and other times I just found it depressing and had to take a break. Recently I have had a friend whose son died after trying for the nth time to get away from drugs. I also had a former student pass away after a 2 year battle with leukemia, searching for a stem cell donor match and in the end, not finding one and having cancer take him. Kate survives her cancer diagnosis and it seems like it has given her a new way to look at life. I especially appreciated the appendixes at the end with tips on and to not do/say to people who are facing death as well as things to do/say. I'm interested in her research about prosperity gospel and plan to read her book, Blessed: The History of the American Prosperisty Gospel, as well as The Preacher's Wife: The Precarious Power of Evangelical Women Celebrities.

She takes on touch topics and topics that I'm interested in. I like her. I plan to add her blog to my blogroll as well as her podcast. 

Goodreads says:

A divinity professor and young mother with a Stage IV cancer diagnosis explores the pain and joy of living without certainty.

Thirty-five-year-old Kate Bowler was a professor at the school of divinity at Duke, and had finally had a baby with her childhood sweetheart after years of trying, when she began to feel jabbing pains in her stomach. She lost thirty pounds, chugged antacid, and visited doctors for three months before she was finally diagnosed with Stage IV colon cancer.

As she navigates the aftermath of her diagnosis, Kate pulls the reader deeply into her life, which is populated with a colorful, often hilarious collection of friends, pastors, parents, and doctors, and shares her laser-sharp reflections on faith, friendship, love, and death. She wonders why suffering makes her feel like a loser and explores the burden of positivity. Trying to relish the time she still has with her son and husband, she realizes she must change her habit of skipping to the end and planning the next move. A historian of the "American prosperity gospel"--the creed of the mega-churches that promises believers a cure for tragedy, if they just want it badly enough--Bowler finds that, in the wake of her diagnosis, she craves these same "outrageous certainties." She wants to know why it's so hard to surrender control over that which you have no control. She contends with the terrifying fact that, even for her husband and child, she is not the lynchpin of existence, and that even without her, life will go on.

On the page, Kate Bowler is warm, witty, and ruthless, and, like Paul Kalanithi, one of the talented, courageous few who can articulate the grief she feels as she contemplates her own mortality.

When Breath Becomes Air (Paul Kalanithi)

 

I was nervous about reading this book for my book club. Perhaps it would be too close to home. My husband has had health issues for the past four years, starting with a stroke and most recently with heart issues. He has not felt well since his stroke four years ago and is under constant supervision of doctors. I continue to hold on to hope for many more years with him despite the daily troubles. 

I found Paul Kalanithi's writing to be beautiful and comforting. He approached his cancer, his life and his death with courage, carefully calculating what was the most important things to check of as time went by. He said: You can't ever reach perfection, but you can believe in an asymptote toward which you are ceaselessly striving (p. 115)  And isn't that the key? 

I have started to follow his wife on twitter. It must be something to publish a book that tells your story so openly. She currently works as an internist at Stanford and is raising their daughter.

Goodreads says:

For readers of Atul Gawande, Andrew Solomon, and Anne Lamott, a profoundly moving, exquisitely observed memoir by a young neurosurgeon faced with a terminal cancer diagnosis who attempts to answer the question 'What makes a life worth living?'

At the age of thirty-six, on the verge of completing a decade's worth of training as a neurosurgeon, Paul Kalanithi was diagnosed with stage IV lung cancer. One day he was a doctor treating the dying, and the next he was a patient struggling to live. And just like that, the future he and his wife had imagined evaporated. When Breath Becomes Air chronicles Kalanithi's transformation from a naïve medical student "possessed," as he wrote, "by the question of what, given that all organisms die, makes a virtuous and meaningful life" into a neurosurgeon at Stanford working in the brain, the most critical place for human identity, and finally into a patient and new father confronting his own mortality.

What makes life worth living in the face of death? What do you do when the future, no longer a ladder toward your goals in life, flattens out into a perpetual present? What does it mean to have a child, to nurture a new life as another fades away? These are some of the questions Kalanithi wrestles with in this profoundly moving, exquisitely observed memoir.

Paul Kalanithi died in March 2015, while working on this book, yet his words live on as a guide and a gift to us all. "I began to realize that coming face to face with my own mortality, in a sense, had changed nothing and everything," he wrote. "Seven words from Samuel Beckett began to repeat in my head: 'I can't go on. I'll go on.'" When Breath Becomes Air is an unforgettable, life-affirming reflection on the challenge of facing death and on the relationship between doctor and patient, from a brilliant writer who became both.

Sadako and the Thousand Paper Cranes (Coerr)

We chose between Number the Stars and Sadako and the Thousand Paper Cranes for our grade 3 book club choice this month. I was pleased that they chose this book because I have never read the entire thing (although, it sure isn't that long). However, having a quick read is a great thing for early in the year. Hopefully, more kids will have read it this month. We were going for a bit of a Remembrance Day theme. I think it fit the bill quite well. I kind of thought it was interesting that it is a Canadian author writing about a war-time attach by Americans on Japanese. Quite a mix! Whatever your thoughts are on the war, no one can really argue that the affects of war on children is unjust.

It's been interesting to hear my student's reviews of the book. Children don't often read sad books. It has received a 3/5 by many students because it's sad. No doubt, it has had a big impact on them.

Goodreads says:

Hiroshima-born Sadako is lively and athletic--the star of her school's running team. And then the dizzy spells start. Soon gravely ill with leukemia, the "atom bomb disease," Sadako faces her future with spirit and bravery. Recalling a Japanese legend, Sadako sets to work folding paper cranes. For the legend holds that if a sick person folds one thousand cranes, the gods will grant her wish and make her healthy again. Based on a true story, Sadako and the Thousand Paper Cranes celebrates the extraordinary courage that made one young woman a heroine in Japan. 

The Lemonade Club (Patricia Polacco)

It's good for kids to see the emotion that can come from a story, right?

This one definitely made me cry. It's a beautiful story! It would be good to read this one around Terry Fox run time as one of the girls gets cancer in the story.

Goodreads summary:

Everyone loves Miss Wichelman?s fifth-grade class?especially best friends Traci and Marilyn. That?s where they learn that when life hands you lemons, make lemonade! They are having a great year until Traci begins to notice some changes in Marilyn. She?s losing weight, and seems tired all the time. She has leukemia?and a tough road of chemotherapy ahead. It is not only Traci and Miss Wichelman who stand up for her, but in a surprising and unexpected turn, the whole fifth-grade class, who figures out a way to say we?re with you. In true Polacco fashion, this book turns lemons into lemonade and celebrates amazing life itself.

The Fault in Our Stars (John Green)

The main character in this book loves reading and the story is centered around her love of a book: An Imperial Affliction. I loved this quote:

p. 33: My favorite book, by a wide margin, was An Imperial Affliction, but I didn't like to tell people about it. Sometimes, you read a book and it fills you with this weird evangelical zeal, and you become convinced that the shattered world will never be put back together unless and until all living humans read the book. And then there are books like An Imperial Affliction which you can't tell people about, books so special and rare and yours that advertising your affection feels like betrayal.
It wasn't even that the book was so good or anything; it was just that the author, Peter Van Houten, seemed to understand me in weird and impossible ways. An Imperial Affliction was my book, in the way my body was my body and my thoughts were my thoughts.

The author has a great way with words and there were many times where I had to pause and chew on the words a little longer to truly appreciate them.

And to get a little philosophical - I think the underlying message in this book could be that we need to write our own stories. She tries to find out how An Imperial Affliction should end - but is unable. (I loved how Peter Van Houten was portrayed, by the way....shocking and ridiculous and pathetic). In the end, she really should have written how the story should end....just as she writes how her story will end.

I have a confession though: I didn't cry.
I know. I have no heart.
I do, however, think it's really really good. You should read it.

Originally posted July 18, 2013. Reread May 18, 2020: It's been 7 years since I first read this. Since then I've been raising teenagers. I have a whole new perspective on teenagers. The moments where Hazel's parents struggle with Hazel's cancer really got to me. In addition, my brother currently has stage 4 cancer. This was a tough and touching re-read.

                                         -----------------------------------------------

Augustus: He's seldom seen without a cigarette.And by the way that cigarette....is just a metaphor.

"You put the killing thing right between your teeth, but you don't give it the power to do its killing."

P. 157 Some tourists think Amsterdam is a city of sin, but in truth it is a city of freedom. And in freedom, most people find sin.


I found this on GoodReads. I have no idea who made it, but it's a great summary of wonderful things to remember about this book.